Wednesday, January 11, 2012

New DX

I spent my afternoon driving almost 2 hours away to sit with a very insightful neuro-psychologist. She has spent 10 hours with my son and I trying to dx him properly. In the end, she said his RAD and PTSD are not the key players anymore and while he will continue to struggle with both, his current dx is Childhood Onset Schizophrenia and PDD-NOS. We had been told by a psychiatrist during one of his early week long hospitalizations that he had it but had failed to get any one willing to put it in writing. No one wants to label a child with this. I can't blame them. This doctor did a fabulous job explaining his new evaluation and how to help him. This will change his educational career and help him reach his full potential.

This new dx also means we have experience with every disorder/mental illness except FAS. How messed up is that? With another child experiencing auditory hallucinations, our worst fear is that we are moving towards 3 of the six siblings with Schizophrenia. It's not fair. Mental illness is a bitch.

My 2 children that have made recent allegations about their former foster parent are really struggling. One is acting out at school but shutting down completely and the other has been home for 2 days bc she is too overwhelmed by people. We are waiting to hear when the forensic interview will be scheduled for them. They are both sharing their stories with us separately. My hubby couldn't hold back his tears last night when one finally shared the worst part. My heart breaks for them. Their therapist offered to run out here last night to help bc she is that invested in helping my kids. They are strong and brave kids. We will all be here to help them pick up the pieces.


GB's Mom said...

There is evil in this world. It sucks that the one thing more difficult to treat then RAD is schizophrenia, he he has to deal with that, too.

Meg said...

I've been wondering about your son and I'm glad you are getting some good help with him. That diagnosis makes sense based on everything you've written. Hugs to you and your family.

Fatcat said...

I saw this the other day and thought I'd share it. It might help. Sorry you all have to face such a diagnosis.